Longitudinal predictors of informant-rated involvement of people with dementia in everyday decision-making
findings from the IDEAL program
Additional information
Authors
Sabatini S.,
Martyr A.,
Gamble L. D.,
Collins R.,
Matthews F. E.,
Morris R. G.,
Rusted J. M.,
Pentecost C.,
Quinn C.,
Clare L.
Type
Journal Article
Year
2022
Language
English
Abstract
The extent to which people with dementia are involved in everyday decision-making is unclear. We explored informant-rated involvement of people with dementia in everyday decision-making over 2 years and whether functional, behavioral, and psychological factors related to the person with dementia and the caregiver explain variability in involvement of people with dementia in everyday decision-making. We used IDEAL data for 1182 people with dementia and their caregivers. Baseline mean score on the decision-making involvement scale was 31/45; it minimally declined over time. People with dementia who were female, single, and/or whose caregiver was younger had greater involvement in everyday decision-making than those without these characteristics. Better cognition, fewer functional difficulties, fewer neuropsychiatric symptoms, less caregiver stress, and better informant-rated relationship quality were associated with higher involvement in everyday decision-making. Cognitive and functional rehabilitation, and educational resources for caregivers, could prolong involvement of people with dementia in everyday decision-making.
Keywords
Alzheimer’s disease, Caregiving, Functional ability, Cognitive capacity, Neuropsychiatric symptoms, Caregiver stress, Relationship quality
Journal
Journal of applied gerontology
Volume
42
Number ( Month )
2
Pages (or article number)
290–301
Diffusion
License
CC BY
Visibility
Public
Status open access
Hybrid
